The IECSS project is a longitudinal study that conducts annual interviews with families of children who are accessing disability and developmental services. We interview family members once per year and ask them about the actions and work that they have done to access institutions on behalf of their children. Our methodological approaches produce empirical evidence of the ideology, processes, and social relations (Graheme, 1998) in early intervention, care and education for children with disabilities. We document the institution from the standpoint of families in order to understand the work that they do in relation to these institutions. We have multiple methods of analysis, including:
Institutional ethnography is concerned with how “ruling relations” shape everyday lives. Ruling relations are the administrative, managerial, professional, and discursive organization of the regulations, and the governing structures of a society (Smith, 2006 and 2009). Fundamental to the Institutional Ethnography approach is the mapping of how the actual activities of the institution are carried out (Campbell & Gregor, 2008).
All interviews are coded to identify disability constructs, cultural viewpoints and family perspectives as articulated by Institutional Ethnography. For example, we code attributes and descriptions of process, as well as activities related to institutional interactions. This approach provides a systematic method for analysing the large number of transcripts generated in a longitudinal study of this size.
In addition, we code for reference to particular political or social positions that families hold such as disability and deaf culture, and Indigenous worldview, and racialized and new immigrant childhoods.
We analyse demographic information about the group of participants using questionnaire data. We also do multi-variate analysis of findings from questions about how supported a family feels (adapted from Epley, et al. 2011); and the processes a family has with the program their child attends most frequently using the Measure of Processes of Care (King, et al., 1995).