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Resources

What is Patient Engagement? (PDF file) 

Health Quality Ontario: What is Patient Engagement? (external link)  

Description: This link provides an easy to understand meaning of patient engagement, and provides quick insights and ideas on how to increase patient engagement in Ontario.

Why Engage?

Canadian Institutes of Health Research: What is Patient Engagement and Why Do it? (external link) 

Description: A comprehensive description of patient engagement as well as an overview.

Thinking of Becoming a Patient or Family Advisor?

 (PDF file) A Resource Toolkit for Engaging Patient and Families at the Planning Table (external link) 

Description: Find out more about the values and benefits of patient engagement and discover how patient engagement has improved health outcomes through this toolkit provided by Alberta Health Services.

Relevant information for this resource: 

 (PDF file) The Value of Engaging Patients & Families

 (PDF file) What are the Benefits of Engaging Patients & Families? What Does the Evidence Show?

 (PDF file) Collaborative Relationships Build a Strong Foundation

Ways to Engage

Patient Engagement HIT: The 3 Building Blocks Supporting Patient Engagement Strategies (external link) 

Description: Learn how three building blocks (accessibility, communication, and satisfaction) can help you create a positive patient engagement experience.

 (PDF file) Choosing Methods for Patient Engagement (external link) 

Description: Learn more about how to increase patient engagement with both patient and caregiver strategies including creating a patient and caregiver advisory council, one-on-one interviews, group discussions, and more.

Relevant Info for This resource:

Group Discussions —The Change Foundation’s Methods and Practices in Effective Patient and Caregiver Engagement

 (PDF file) Rules of Engagement (external link) 

Description: This link provided by The Change Foundation provides detailed guidelines on how to increase patient engagement to improve the health care experience.

 (PDF file) Creating and sustaining Patient and Caregiver Advisory Councils • Health Quality Ontario’s guide on Creating an Effective Terms of Reference (external link) 

 (PDF file) Creating and sustaining Patient and Caregiver Advisory Councils Health Quality Ontario’s guide on Choosing Meaningful Projects (external link) 

Description: This easy to follow guide provided by Health Quality Ontario teaches individuals how to form the terms of reference in order to continue building a stronger patient and caregiver advisory council.

Meeting with Patient and Caregiver Associations — Ontario Association of Residents’ Council (external link) 

Meeting with Patient and Caregiver Associations — Family Councils Ontario (external link) 

Description: Learn more about family councils and how you can run or be a part of a self-led group determined to improve long-term care.

Meeting with Patient and Caregiver Associations — Patients Canada (external link) 

Description: Find out more about how you can contribute to improving health care by volunteering in a patient and family advisory council through this link provided by Patients Canada.

Patient Experiences and Patient Engagement Videos

Measuring Patient Engagement: The Basics (Video) (external link) 

Description: Find out more about the levels of patient engagement (individual, committee, and patient and family advisory council) through this YouTube video discussing the importance of metrics in health care and help bring the voice of the patient to the health care system.

“What Matters to You?” Videos (external link) 

Description: Watch a video snippet about the importance of incorporating patients’ needs and opinions through asking what matters, doing what matters, and listening to what matters to patients.

Health Quality Ontario: Video Stories and Reflections (external link) 

Description: In these four short videos provided by Health Quality Ontario, people discuss and reflect on the fulfilling decision to employ public and patient engagement and join Health Quality Ontario’s Patient, Family, and Public Advisors Council.

Glass Hospital: An Amazing Story of Patient Engagement (external link) 

Description: Discover the incredible story of “e-Patient Dave” and his wife Ginny, who underwent bilateral muscle sparing knee replacements and recovered at an astounding rate, in part due to her active, engaged role as a patient.

Vidant Health: Experiences in Care: We All Have a Role (external link) 

Description: Watch this short clip to witness three patients’ health care stories and learn about the positive effects that staff engagement, family engagement, and patient engagement can have on health.